a dragon mom’s words

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An especially warm welcome to all you who’s lives have been altered by a child’s diagnosis - I see you, you are not alone!

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Time travel in the MRI suite

Returning to the MRI suite today was like walking into a memory. Three years ago and just to my left, I was sitting on a hospital bed...

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Alden continues to show slow, but steady, advances. In gross motor skills we have seen increasing trunk stability leading to sitting with...

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Alden is a joyous and social young boy. He loves his sister, lighting up with a smile and squeal when she engages him. He is curious...

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